Just going to take a moment to fill in some space. Ghia is still in Baptist Restorative (Baptist Storage as she called it). She has been incarcerated for 75 days so far. She is still on the ventilator. BUT..She is finally making some progress. She has started eating. She is able to stand. She is working with Physical Therapy. But the BIG thing remains, getting off that ventilator. She has made progress, but still has a way to go. But honestly, 3 weeks ago, I didn't see any hope that she would ever get off the stupid machine. I do see hope now. She is stronger. She is trying. She is still confused about some things, but very clear about others.
So at this point in time....Day 75...Who knows??? She has come a long way. She has a long way to go.
She spent an hour yesterday on facebook with Neil looking at everything she has missed for the past 3 months. She really enjoyed that. And she was actually able to type an entry. So her mind and motor functions are working. They just need strengthening.
I am just going to add this for future reference. This is killing me. It is killing my brother, my sister and my father. But they need to get their own blogs to complain. This is keeping me from enjoying my husband. I am not getting to spend precious time with my so sweet sweet grandbaby. My health is suffering. Me running at half capacity isnt getting enough done to matter to any one. And we are all in this same position. There is no answer. No solution. We just keep going. But there is a price. We are all paying it. Not sure what will be left when this episode is over. I know one thing. I truly believe if mom had realized this outcome, her choice of treatment would have been different. As unhappy and unhealthy as we are all getting from this, SHE is the one confined to the bed and the breathing machine. She is miserable from the inside out. And she knows how hard we are working in real life and in our caregiving. And she would not be happy knowing the toll this has taken from everyone.
Funny thing is...I know a dozen families right now going through similar situations with their parents, children and grandchildren. I promise, I never realized it was this hard on you all. I would have prayed harder and helped more. And if I have learned one thing, it is help more. Find a way. Something as simple as going to the hospital cafeteria and having a cup of coffee, or meeting a caregiver at Wendys for a quick burger. Go let the dog out so the caregiver doesn't have to rush straight home to a pile of poo because they had hospital duty after work. Call the lonely spouse or child and just let them talk or cry. Paying it forward isnt all about paying for someones burger in a drive thru. It is service. It is love. And trust me. Not just in this event, but any event. The first 2 weeks is easy. After that, the world goes back to its regular life. The family is still in turmoil. AFter 75 days. After 2 years. After 5 years. I am guilty of going back to my regular life. And I know better. Shame on me. I will do better. AS SOON AS MY MOMMY COMES HOME!!!!!
